A DISCO and karaoke are being held at a Luton pub tomorrow night (Nov 18) to raise money for research into a genetic condition.
Luton teenager Robyn Martin suffers from Ehlers-Danlos Syndrome, which causes extremely loose joints, hyperelastic skin that bruises easily, and easily damaged blood vessels.
Robyn’s mum, Carol, has organised the back-to-school themed fancy dress fundraiser at the Poynters Arms in Poynters Road, which kicks off at 7.30pm.
Everyone is welcome and there will be raffle and a chance to sponsor brave family friend Chris Sturdy, who is having his chest waxed.
Ehlers-Danlos Syndrome varies in severity and can be fatal, and Carol is working to highlight the case of US former world class ballet dancer Rachel Phillips, whose website helprachelbreathe.com is raising funds for life-saving stem cell treatment due to her airways collapsing by 90 per cent.
Carol said: “If this treatment works it could be a great hope for us in the future.”